Friday, November 29, 2013

How God Povides Rest


 


Bamm! The metal door slammed shut just as Michael dosed off to sleep. He sat straight up in bed. I could see he was trying to figure out where he was. Over a year had passed since the fire. Michael was still recovering in the nursing home, slash rehabilitation center from anoxic brain injury. At 33 years old, he was like a child again in some ways; in others, as stubborn as an old man.

Propped up in a tattered speckled recliner in his room, I had been waiting for him to dose off long enough for me to slip out for the night. It was easier to leave while he slept—for him and for me. He had been half asleep, fully clothed, including his coat.

“Son, let’s go ahead and get you washed up and in your PJs for the night.”

“Whhy, mom-ma?” Confusion framed his expression. “Where… aam I?” His words came out slower since the accident.  He paused and looked around as if seeing the room for the first time.

 “I doon’t… live here!”

I cleared my throat trying to remove the pain I felt for him from my voice. “Son, this is where you live for now.”
“But whyyy can’t I live wheere yoou live?”
 
He didn’t realize, we were both far from home.  We had come to the area seeking a place that specialized in brain injury. Strangers had taken me.  I was always searching for an inspirational word to get through one of his moments.

“Things will work out soon, son.” He wrapped his overcoat tight and crawled back into bed.
Michael’s mind perceived the noise outside his room as danger. He consistently declined therapy, food, showers and medication. There was conversation about moving him to the nursing home section because he was no longer participating in therapy.

I needed to get him home where he could spend his energy healing instead of protecting himself. I spoke with the department heads. They agreed to discharge, but warned me that accessible housing was rare find in the area and could take a year.
“We don’t have a year!” I objected, desperate to get back some form of normality.” I was thinking in time for Christmas.”

“But this is October 1st,” said the discharge planner.

“I know. I will find it myself if I have to.” I began looking immediately… and found nothing. If anything could help me stay positive, a good bible verse could. I kept my bible close and reminded myself often of how God had provided for us so far.

One morning I found an ad that caught my attention. Open House Today, New Apartments with 1, 2 and ½ bedrooms available. That’s strange? I picked up the phone to call, mostly out of curiosity. The realtor, Dawn answered.
“I think you made a typo in your ad.” I said.

“Thanks for bringing that to my attention.” She chuckled. ‘So, are you coming to the open house?”
“No. I’m looking for an accessible apartment. I just called to tell you about the mistake.”

“We have accessible apartments.”

“Are you serious?!!!”

“4 units.”

Scribbling some directions on a crumpled napkin, I hurried out the door. Dawn told me the first contractor abandoned the project and a new contractor had just decided to finish it.

“When will they be ready?”

“Around the first of the year.”
“Hmmm…. Any chance you would allow someone to move in earlier?”

“How early?”

“December?”
“But, we’ll still be doing construction in December.”

“I really needed a home for my son… as quick as possible.”

“Well…you’ll need two month’s rent plus the deposit.”
Knowing it was more than I had, I continued my appeal. “I’m really trusting God to make a way for us.”

Her forehead wrinkled. Clearly, she didn’t understand my Christian dogma.
“I guess I could talk to the owners.”

In a few days, Dawn called. “The owner will let you move in December and since we will still be doing construction, there’s no first month’s rent.”

Hers words were fresh air in my lungs. We moved into our apartment on December 1st. It wasn’t until later in the evening when I knew Michael finally felt the peace that comes from being home.

I was reclining in the speckled chair when I heard him coming toward the living room. He rolled himself to threshold and peeked around the corner. I looked up to see him completely undressed, down to his underwear. He smiled.

“G-good night, mom…ma.”

 

 

 

Monday, December 3, 2012

Only 11 days left

 
The renovations are on schedule to start this weekend. Eleven days before we load up the trailer, board the train and head south. Yay! Best case scenario; the renovations go off without a hitch AND on time, and the wheelchair fits through the doors. I don't even want to consider the worse case. Besides that, who has time to worry? Much too much to do.  Note to self...don't forget to order a portable wheelchair ramp. We'll need that to get from the garage into the house. Maybe later I'll look into something more permanent.

I have spent the last couple of weeks deciding on flooring and paint colors. In addition to making some doors wider, the contractor will also be pulling up carpeting in the designated accessible bedroom to lay some wood flooring. Hard non-skid surfaces are preferred for wheelchair use, not only because it’s easier to roll the chair but also safer.  Keep in mind that I am doing all this long distance, making my selections from New York and coordinating the purchases in Arkansas.

The good news is the home improvement store in my now town has a store in my new town. The not so good news is the wood flooring that was in most of the rooms by the sellers is now discontinued. So the search is on for something that is as similar as possible.

I also want to do a different wall color in the accessible bedroom. The current color is nice but much too dark unless you want to sleep all day. Hmmm. Oh...sorry. I drifted off for a minute. Colors, right?  I like the colors in most of the other rooms and even the green kitchen cabinets don’t bother me too much. It might be because I am just too tired to fight it. In any case, it will be fine for now. I am just looking forward to moving in and getting settled for the first time in four years.

 
 

 
 


Friday, November 23, 2012

And the winner is...


After months of planning, I finally made my out of state trip to Arkansas to find the right house that meets our accessibility needs.  And oh, what a trip!  From arrangements for my son’s care during my absence falling through one day before my scheduled flight, to getting locked out of the house where I was staying during my trip and having to drive to the other side of town with a strange man in my pajamas, to a five hour delay at O’Hare airport due to dangerous high winds….let’s just say the trip was eventful.
Looking for the right house in two days was an event all by itself—quite a marathon. After looking at somewhere around thirty houses, I decided on one that is not new, not exactly old, but sort of in between. (See previous post for more discussion on new versus old construction) The house was built in 1980, but has been updated recently so it is move-in ready, minus a few minor modifications.

We will have to have some doors made wider and possibly reconfigure the bathroom a bit, but the house is otherwise wheelchair friendly.

There really weren’t a lot of options to choose from in the area, but I could see that of the newer houses that were being built, some were going with a more universal design , also mentioned a previous post. Since my move is planned for December, I chose not to wait for something to be built.

I did meet with a contractor to consider the possibilities of building, but given the cost per square foot to build, I would have to compromise on the size of the home. It was easier and less expensive to find the square footage I wanted at the price I wanted in an existing home.

Now that I have found the house, I am now waiting on all the closing process. Some delay is built in to factor in the Thanksgiving holiday, but I am hoping to be done with closing by Dec 7th. At that point the contractor will come in and do his magic and we will begin our long awaited exodus from New York to our new home in Arkansas.

Bathroom link;   http://homerenovations.about.com/od/bathrooms/a/artbathlayout.htm
Widen door link;   http://www.thisoldhouse.com/toh/asktoh/question/0,,1192147,00.html

Tuesday, October 30, 2012

Something New, Old or In Between

As wonderful as it would be to find a universal design home, as described in my last post, the chances of that happening are slim to none. The concept is something that will hopefully become the norm in the near future; however, at this time, most of them are custom built—probably not going to be an option for us
So, the hunt is on for the next best thing; an existing house that will be suitable with a few minor modifications. Michael is in a wheelchair and does not stand at all. So, a suitable house means one that has most of the features of a universal design: level lot, open floor plan, no step entrance, wide hallways, and the biggie, a huge bathroom. If we can find something that already has all of this, some minor modification would mean widening of interior doors. Some of the ranch and traditional style houses built in the last five years or so actually fit most of this description. The hardest part to find is a bathroom that is big enough and with the right layout to accommodate the wheelchair. That too can usually be modified, but I am hoping to find something that is move-in ready. The last four years of our lives since the accident have been one major event after another.  Truthfully, if I don’t have to, I prefer not to take on any big projects for a while.
With that being said here is the next thing to consider. Should I purchase an older home or one that is brand new? Personally, I would much rather a house no one else has lived in, but I also want well-built, quality construction. And, there is some debate as to whether newer homes are built as well as older homes.
Older homes used real wood and plaster versus engineered wood and drywall found in newer homes. Some believe better craftsmanship is found in older homes. One realtor has told me that even the way the foundation is laid in older homes is better, which according to an article written in This Old House magazine“…keeps out moisture, insulates against the cold, and resists movement of the earth around it.” Tom Silva, the contractor for the show by the same names says the best foundations are poured concrete; not concrete blocks prone to leaks and cracks used by most contractors in the last 25 years.
If you’re a visual learner like me, check out this link with some great photos of old and new home foundations.
https://www.google.com/search?q=new+vs+old+home+foundation&hl=en&qscrl=1&rlz=1T4AD FA_enUS488US488&prmd=imvnsfd&tbm=isch&tbo=u&source=univ&sa=X&ei=aNyPUJeeNsjA0QHn9YHYDw&sqi=2&ved=0CHYQsAQ&biw=1058&bih=496

It would seem then that whether new or old, good construction is dependent upon a good contractor. Either way has advantages and disadvantages. It also seems the decision to buy new or old is more about other things like having an old established neighborhood with mature landscaping or a group of people getting to know each other while they wait for the grass to grow; character or modern convenience; square footage that has more but smaller rooms or less but more spacious rooms.
I know which way I’m leaning, but I won’t close my mind to either until I have looked at a few. I’m meeting with both a realtor and a builder next week. Stay tuned.
References:
Max Alexander, This Old House magazine From the Ground Up: Foundations, A foundation is forever—how to do it right, http://www.thisoldhouse.com/toh/article/0,,1203559,00.html
Marilyn Lewis, Will your new home still be standing in 50 years? MSN Real Estate, http://homebuying.about.com/od/buyingahome/qt/052307NeworOld.htm
Elizabeth Weintraub, Should a First-Time Home Buyer Buy New or Old? http://homebuying.about.com/od/buyingahome/qt/052307NeworOld.htm

Sunday, September 23, 2012

If Not Now, When?


Thinking I would be in New York for a few weeks at the most, I left all my furniture, clothing, books, personal belongings and many precious memories back in Missouri. Four years later, I am not home yet, but all things going well…we are heading home soon.

After four years and a life-changing accident, many things have changed and home has a whole new meaning. Pre-accident, my son Michael left home after high school graduation. I became a single again woman on the go, and I might add going as I pleased.

Post-accident, the “I” has again become “we.” And my new normal has become advocating and caring for my recently brain injured and amputee adult son.  

When I left Missouri, it was sudden and without warning. Being totally unprepared, I feel I have become a bit of a vagabond in the process. I am not sure where home is anymore, but if home is where the heart is, as the saying goes, I am in the right place. I am so blessed to be able to care for Michael and so thankful to God for his life. Each day I get to see what a miracle looks like.

Choosing to care for Michael at home meant staying in New York indefinitely because relocating in his condition was not an option. He had been in the hospital four months and another 11 months in a nursing facility/rehab. He had come so far but still had a long way to go. I got a small apartment in the area. Finding a place with wheelchair accessibility proved to be quiet the feat, but I found one just in time to meet my goal of having him out of institutionalized life by Christmas. We moved into the apartment on December 1, 2009. We had nothing much, a couple of beds and a dining room table--but it was the best Christmas EVER!!!

Now with all the progress Michael has made, we can finally put down some stakes—yes, we are going to finally put some pictures on the wall, make a special place for his collection of baseball caps and settle in. But where—New York, Missouri….or somewhere else?

I’ve done some research and given it a lot of thought and prayer. Now it’s time to decide.
 
I am going to be presenting some information about housing needs for the disabled, posting some of the houses we are considering and maybe even asking you to vote. Then at the end of this class, I will reveal our new fully wheelchair-accessible home.
So stay tuned as we search out the next place we will call  home in our new normal life.